Ongoing Care for Childhood Cancer Survivors

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So in case you didn’t already know, i’m a childhood cancer survivor (let’s go with CCS for short). I haven’t done a full post about it, but I probably will soon. Then again, i’ve been saying that for over a year now so we’ll see.

I’m a part of this group called The Childhood Cancer Survivors of BC (CCSBC) who champion for the general health, well being and ongoing care for, you guessed it, CCSs. I’m gonna be honest here and say that I don’t really participate in this group as much as I probably should. I have a bunch of excuses that aren’t that good but, let’s address my shitty participation grades another time.

I’m really lucky when it comes to my after effects of being a CCS. I have all my limbs intact and they all work well considering, my bones are healthy and strong considering, my organs are all working well considering and i’m in a mentally good place pretty much all the time. I only have to take a few medications, have a ankle brace and have alopecia side effects but that’s not so bad.

So with all that good stuff going for me, my ongoing care regiment is pretty mellow. I’ve been in remission for about 22 years now and have been really healthy during that time. The only thing I feel i’m missing, is having more CCS friends.

Don’t get me wrong, i’ve reached out to other CCS groups to try and make new friends and really connect with the people there. I just can’t seem to find anyone who’s really on the same page as me in a “life” sense. Have you ever heard the saying,

“Surround yourself with like minded and positive people because negative people will bring you down and blah blah blah.”

I do my best to live by that idea and am pretty bummed to say that, quite a few of the CCSs that i’ve tried to connect with kinda bring me down in a negative way. It sucks though, because I know that most of the time it’s not the CCS’s fault that he or she is like that. When a parent’s child is sick, it’s only natural for them to want to protect and do anything to make their child’s life better. This “babying” sometimes continues for too long though, even as the child transitions into adulthood. Me, being so independent, cannot relate to these kids at all. In fact, it’s frustrating to be in the same room as them.

I think a big part of the ongoing care for CCS kids needs to include counselling or something like that. So many CCSs feel limited in what they can achieve when they really aren’t. Most of the time, the only thing holding them back is themselves.

(Click HERE for the article that pretty much inspired my semi-rant here)

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